Last updated September 19, 2017  

Aging & Developmental Disabilities Publications

Journal Articles

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Woodman, A. C., Mailick, M. R., Anderson, K. A., & Esbensen, A. J. (2014). Residential transitions among adults with intellectual disability across 20 years. American Journal of Intellectual and Developmental Disabilities. 119(6):496-515. doi: 10.1352/1944-7558-119.6.496.

Esbensen AJ, Mailick MR, Silverman W. (2013) Long-term impact of parental well-being on adult outcomes and dementia status in individuals with Down syndrome. American Journal of Intellectual and Developmental Disabilities, 118(4), 294-309. doi:10.1352/1944-7558-118.4.294

Esbensen, A.J. & Seltzer, M.M. (2011). Accounting for the "Down syndrome advantage." American Journal of Intellectual and Developmental Disabilities, 116(1), 3-15. doi:10.1352/1944-7558-116.1.3

Esbensen, A., Seltzer, M.M., & Krauss, M.W. (2008). Stability and change in health, functional abilities and behavior problems among adults with and without Down syndrome. American Journal on Mental Retardation, 113(4), 263-77. doi:10.1352/0895-8017(2008)113[263:SACIHF]2.0.CO;2

Esbensen, A.J., Seltzer, M.M., & Greenberg, J.S. (2007). Factors predicting mortality in midlife adults with and without Down syndrome living with family. Journal of Intellectual Disability Research, 51(12), 1039-50. doi:10.1111/j.1365-2788.2007.01006.x

Orsmond, G.I. & Seltzer, M.M. (2007). Siblings of individuals with autism or Down syndrome: Effects on adult lives. Journal of Intellectual Disability Research, 51(9), 682-96. doi:10.1111/j.1365-2788.2007.00954.x

Esbensen, A. J., Seltzer, M. M., & Greenberg, J. S. (2006). Depressive symptoms of adults with mild to moderate intellectual disability and their relation to maternal well-being. Journal of Policy and Practice in Intellectual Disabilities, 3(4), 229-237. doi:10.1111/j.1741-1130.2006.00084.x

Esbensen, A.J., Seltzer, M.M., Greenberg, J.S., & Benson, B.A. (2005). Psychometric evaluation of a self-report measure of depression for individuals with mental retardation. American Journal of Mental Retardation, 110(6), 469-481. doi:10.1352/0895-8017(2005)110[469:PEOASM]2.0.CO;2

Seltzer, M.M. & Krauss, M.W. (2001). Quality of life of adults with mental retardation/developmental disabilities who live with family. Mental Retardation and Developmental Disabilities Research Reviews, 7(2), 105-14. doi:10.1002/mrdd.1015

Seltzer, M.M., Krauss, M.W., Hong, J., & Orsmond, G.I. (2001). Continuity or discontinuity of family involvement following residential transitions of adults who have mental retardation. Mental Retardation, 39(3), 181-94. doi:10.1352/0047-6765(2001)039<0181:CODOFI>2.0.CO;2

Orsmond, G.I., & Seltzer, M.M. (2000). Brothers and sisters of adults with mental retardation: The gendered nature of the sibling relationship. American Journal on Mental Retardation. 105(6), 486-508. doi:10.1352/0895-8017(2000)105<0486:BASOAW>2.0.CO;2

Essex, E.L., Seltzer, M.M., & Krauss, M.W. (1999). Differences in coping effectiveness and well-being among aging mothers and fathers of adults with mental retardation. American Journal on Mental Retardation, 104(6), 545-63. doi:10.1352/0895-8017(1999)104<0545:DICEAW>2.0.CO;2

Freedman, R. I., Griffiths, D., Krauss, M. W., & Seltzer, M. M. (1999). Patterns of respite use by aging mothers of adults with mental retardation. Mental Retardation, 37(2), 93-103. doi:10.1352/0047-6765(1999)037<0093:PORUBA>2.0.CO;2

Seltzer, M. M. & Heller, T. (1997). Families and caregiving across the life course: Research advances on the influence of context. Family Relations, 46(4), 321-323.

Seltzer, M. M., Greenberg, J. S., Krauss, M. W., Gordon, R. M., & Judge, K. (1997). Siblings of adults with mental retardation or mental illness: Effects on lifestyle and psychological well-being. Family Relations, 46(4), 395-405. doi:10.2307/585099

Essex, E. L., Seltzer, M. M., & Krauss, M. W. (1997). Residential transitions of adults with mental retardation: Predictors of waiting list use and placement. American Journal on Mental Retardation, 101(6), 613-29.

Freedman, R. I., Krauss, M. W., & Seltzer, M. M. (1997). Aging parents' residential plans for adult children with mental retardation. Mental Retardation, 35(2), 114-123. doi:10.1352/0047-6765(1997)035<0114:APRPFA>2.0.CO;2

Seltzer, M. M., Greenberg, J. S., Krauss, M. W., & Hong, J. (1997). Predictors and outcomes of the end of co-resident caregiving in aging families of adults with mental retardation or mental illness. Family Relations, 46, 13-22. doi:10.2307/585602

reprinted in A. J. Walker, M. Manoogian-O Dell, L. McGraw, & D. White (Eds.) (2001). Families in later life: Connections and transitions (pp. 212-217). Thousand Oaks, CA, Pine Forge Press.

Krauss, M. W., Seltzer, M. M., Gordon, R., & Friedman, D.H. (1996). Binding ties: The roles of adult siblings of persons with mental retardation. Mental Retardation, 34(2), 83-93.

Seltzer, M. M., Krauss, MW., Walsh, P., Conliffe, C., Larson, B., Birkbeck, G., Hong, J., & Choi, S. C. (1995). Cross-national comparisons of aging mothers of adults with intellectual disabilities. Journal of Intellectual Disability Research, 39(5), 408-18. doi:10.1111/j.1365-2788.1995.tb00545.x

Seltzer, M. M., Greenberg, J. S., & Krauss, M. W. (1995). A comparison of coping strategies of aging mothers of adults with mental illness or mental retardation. Psychology and Aging, 10(1), 64-75. doi:10.1037/0882-7974.10.1.64

Greenberg, J. S., Seltzer, M. M., & Greenley, J. R. (1993). Aging parents of adults with disabilities: The gratifications and frustrations of later life caregiving. The Gerontologist, 33(4), 542-550. doi:10.1093/geront/33.4.542

Krauss, M. W., & Seltzer, M. M. (1993). Current well-being and future plans of older caregiving mothers. Irish Journal of Psychology, 14(1), 47-64. doi:10.1080/03033910.1993.10557914

Seltzer, M. M., Krauss, M. W., & Tsunematsu, N. (1993). Adults with Down syndrome and their aging mothers: Diagnostic group differences. American Journal on Mental Retardation, 97(5), 496-508.

Krauss, M. W., Seltzer, M. M., & Goodman, S. J. (1992). Social support networks of adults with retardation who live at home. American Journal on Mental Retardation, 96(4), 432-441.

Seltzer, G. B., Begun, A., Seltzer, M. M., & Krauss, M. W. (1991). Adults with mental retardation and their aging mothers: Impacts of siblings. Family Relations, 40(3), 310-317. doi:10.2307/585017

Erickson, M., Krauss, M. W., & Seltzer, M. M. (1989). Perceptions of old age among a sample of aging mentally retarded persons. Journal of Applied Gerontology, 8, 251-260. doi:10.1177/073346488900800211

Book Chapters

     
Ha, J. & Seltzer, M. M. (2009). Caregiving across the life span. In Reis, H. & Sprecher, S. (Eds.). Encyclopedia of Human Relationships. (pp. 198-203). Thousand Oaks, CA: SAGE Publications, Inc.
doi:10.4135/9781412958479
 
Encyclopedia of Human Relationships
     
Esbensen, A.J., Seltzer, J.M., & Krauss, M.W. (in press). Life course perspectives in autism and mental retardation research: The case of family caregiving. In J.A. Burack, R.M. Hodapp, R.M., & E. Zigler (Eds.) Handbook of Mental Retardation and Development, second edition. Oxford: Oxford University Press.  
andbook of Mental Retardation and Development
     
Seltzer, M. M., Greenberg, J. S., Orsmond, G.I., Lounds, J., & Smith, M. J. (2008). Unanticipated lives: Inter- and intra-generational relationships in families with children with disabilities. (pp. 233-241). In Booth, A., Crouter, A. C., Bianchi, S., & Seltzer, J. A. (Eds.) Caring and exchange within and across generations. Washington, DC: Urban Institute Press.    
     
Esbensen, A.J., Seltzer, M.M., & Abbeduto, L. (2007). Family well-being in Down syndrome and fragile X syndrome. In J. E. Roberts, R. Chapman, & S. Warren (Eds.), Speech and language development and intervention in Down syndrome and fragile X syndrome (pp. 275-295). Baltimore, MD: Brookes.  
Speech and language development and intervention in Down syndrome and fragile X syndrome
     
Robison, D., Krauss, M.W., & Seltzer, M.M. (2001). Does parenting ever end? Experiences of parents of adults with Down syndrome. In S. Pueschel (Ed.), A parent's guide to Down syndrome: Toward a brighter future. Baltimore, MD Paul H. Brookes.  
Down Syndrome
     
Essex, E.L., Seltzer, M.M., & Krauss, M.W. (2001). Fathers as caregivers for adult children with mental retardation. In B.J. Kramer & E.H. Thompson (Eds.), Men as caregivers: Theory, research, and service implications. New York: Springer.  
Men as Caregivers
     
Seltzer, M. M., & Greenberg, J. S. (1999). The caregiving context: The intersection of social and individual influences in the experience of family caregiving. In C. D. Ryff & J. Marshall (Eds.), The self and society in aging process. New York: Springer.  
The self and society in aging process.
     

Krauss, M. W., Greenberg, J. S., & Seltzer, M. M. (1999). Aging in adults with developmental disabilities and severe and persistent mental illness. In J. J. Gallo, & J. Busby-Whitehead, P. V. Rabins, R. A. Silliman, & J. B. Murphy, (Eds.), Reichel's care of the elderly: Clinical aspects of aging (fifth edition). Baltimore: Williams & Wilkins.

 

 
Reichel's care of the elderly: Clinical aspects of aging
     
Krauss, M. W., & Seltzer, M. M. (1999). An unanticipated life: The impact of lifelong caregiving. In H. Bersani (Ed.), Responding to the challenge: International trends and current issues in developmental disabilities. Brookline, MA: Brookline Books.  
Responding To The Challenge
     

Seltzer, M. M., & Krauss, M. W. (1998). Families of adults with Down syndrome. In J. F. Miller, L. A. Leavitt, & M. Leddy (Eds.), Communication development in young children with Down syndrome. Baltimore: Paul H. Brookes.

 

   
     

Seltzer, M. M. (1998). Service utilization patterns and organization of the service delivery system for persons with mental retardation and other developmental disabilities. In S. Allen & V. Mor (Eds.), Living in the community with disability: A cross-group perspective. New York: Springer.

 

 
Living in the community with disability
     
Seltzer, M. M., (1997). Later life parenting by older mothers of adults with disabilities. In E. Bleckman (Ed.), Behavioral Medicine for women: A comprehensive handbook. NY: Guildford Publications.  
Behavioral Medicine for women: A comprehensive handbook
   
Krauss, M. W., & Seltzer, M. M. (1997). Life course perspectives on mental retardation research: The case of family caregiving. In J. A. Burack, R. M. Hodapp, & E. Zigler (Eds.), Handbook on mental retardation and development. NY: Cambridge University Press.  
     

Gordon, R. M., Seltzer, M. M., & Krauss, M. W. (1997). The aftermath of parental death: Changes in the context and quality of life. In R. L. Schalock (Ed.), Quality of life: Its application to persons with disabilities. Washington, DC: American Association on Mental Retardation.

 

 
Quality of life: Its application to persons with disabilities
     
Seltzer, M. M., Krauss, M. W., Choi, S. C., Hong, J. (1996). Midlife and later life parenting of adult children with mental retardation. In C. D. Ryff & M. M. Seltzer (Eds.), The parental experience at midlife. Chicago: University of Chicago Press.  
     

Krauss, M. W., & Seltzer, M. M. (1995). Long-term caring: Family experience over the life course. In D. Rosenthal & L. Nadel (Eds.), Down syndrome: Living and learning in the community. New York: John Wiley.

 

 
 Down Syndrome - Living and Learning in the Community
     

Krauss, M. W., & Seltzer, M. M. (1994). Taking stock: Expected gains from a lifespan perspective on mental retardation. In M. M. Seltzer, M. W. Krauss, & M. P. Janicki (Eds). Life course perspectives on adulthood and aging. Washington, DC: American Association on Mental Retardation.

 

 
Life course perspectives on adulthood and aging
     

Seltzer, M. M., & Krauss, M. W. (1994). Aging parents with co-resident adult children: The impact of lifelong caregiving. In M. M. Seltzer, M. W. Krauss, & M. P. Janicki (Eds.), Life course perspectives on adulthood and old age. Washington, DC: American Association on Mental Retardation.

 

 
Life course perspectives on adulthood and aging
     
Seltzer, M. M., & Ryff, C. D. (1994). Parenting across the lifespan: The normative and nonnormative cases. In D. L. Featherman, R. Lerner, & M. Perlmutter (Eds.), Life-span development and behavior (Vol. 12). Hillsdale, NJ: Lawrence Erlbaum.    
     
     
     
Krauss, M. W., & Seltzer, M. M. (1993). Coping strategies among older mothers of adults with retardation: A life span developmental perspective. In A. P. Turnbull, J. M. Patterson, S. K. Behr, D. L. Murphy, J. G. Marquis, & M. J. Blue-Banning (Eds.), Cognitive coping, families, and disability: Participatory research in action. Baltimore: Paul H. Brookes.  
Cognitive coping, families, and disability: Participatory research in action
     

Seltzer, M. M., & Krauss, M. W. (1993). Adult sibling relationships of persons with mental retardation. In Z. Stoneman & P. Berman (Eds.), Siblings of individuals with mental retardation, physical disabilities, and chronic illness. Baltimore: Paul H. Brookes.

 
Siblings of individuals with mental retardation, physical disabilities, and chronic illness
     
Seltzer, M. M., and Seltzer, G. B. (1992). Aging in persons with developmental disabilities. In F. J. Turner (Ed.), Mental health and the elderly. NY: The Free Press.  
Mental health and the elderly
     

Seltzer, M. M (1992). Family caregiving across the full life span. In L. Rowitz (Ed.), Mental retardation in the year 2000. New York: Springer-Verlag.

 

   
     
Seltzer, M. M. (1992). Aging in persons with developmental disabilities. In J. E. Birren, R. B. Sloane, & G. D. Cohen (Eds.), Handbook of mental health and aging. New York: Academic Press.    
     
Seltzer, M. M., Krauss, M. W., & Heller, T. (1991). Family caregiving over the life course. In M.P. Janicki, & M. M. Seltzer (Eds.), Aging and developmental disabilities: Challenges for the 1990s. Washington, DC: Special Interest Group on Aging, AAMR.    
     
Janicki, M. P., Krauss, M. W. & Seltzer, M. M. (1988). Context, models, and issues for community residences. In M. P. Janicki, M. W. Krauss, & M. M. Seltzer (Eds.), Community residences for persons with developmental disabilities: Here to stay. Baltimore: Paul H. Brookes.    
     
Janicki, M. P., Krauss, M. W. & Seltzer, M. M. (1988). Agenda for service policy, and research. In M.P. Janicki, M. W. Krauss, & M. M. Seltzer (Eds.), Community residences for persons with developmental disabilities: Here to stay. Baltimore: Paul H. Brookes.    
     
     

 

 

 

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