Last updated April 5, 2019  

Aging & Developmental Disabilities Publications

Journal Articles

Song, J., Mailick, M. R., & Greenberg, J. S. (2018). The impact of the Great Recession on midlife and older parents of individuals with a mental health problem or a developmental disability. The Gerontologist, 58(3), 448-455. doi:10.1093/geront/gnw269.

Song, J., Mailick, M. R., & Greenberg, J. S. (2018). Health of parents of individuals with developmental disorders or mental health problems: Impacts of stigma. Social Science & Medicine, 217, 152-158. doi:10.1016/j.socscimed.2018.09.044.

Maenner, M.J., Greenberg, J.S., & Mailick, M.R. (2015). Association Between Low IQ Scores and Early Mortality in Men and Women: Evidence From a Population-Based Cohort Study. American Journal of Intellectual and Developmental Disabilities, 120(3):244-57. doi: 10.1352/1944-7558-120.3.244.

Woodman, A. C., Mailick, M. R., Anderson, K. A., & Esbensen, A. J. (2014). Residential transitions among adults with intellectual disability across 20 years. American Journal on Intellectual and Developmental Disabilities, 119(6), 496-515. PMID: 25354121, doi:10.1352/1944-7558-119.6.496.

Esbensen, A. J., Mailick, M. R., & Silverman, W. (2013). Long-term impact of parental well-being on adult outcomes and dementia status in individuals with Down syndrome. American Journal on Intellectual and Developmental Disabilities, 118(4), 294-309. PMID: 23937371, doi:10.1352/1944-7558-118.4.294.

Maenner, M. J., Smith, L. E., Hong, J., Makuch, R., Greenberg, J. S., & Mailick, M. R. (2013). Evaluation of an activities of daily living scale for adolescents and adults with developmental disabilities. Disability and Health Journal, 6(1), 8-17. doi:10.1016/j.dhjo.2012.08.005.

Hartley, S. L., Seltzer, M. M., Head, L., & Abbeduto, L. (2012). Psychological well‐being in fathers of adolescents and young adults with Down syndrome, fragile X syndrome, and autism. Family Relations, 61(2), 327-342. doi:10.1111/j.1741-3729.2011.00693.x.

Esbensen, A. J., & Seltzer, M. M. (2011). Accounting for the “Down syndrome advantage”. American Journal of Intellectual and Developmental Disabilities, 116(1), 3-15. PMID: 21291307, doi: 10.1352/1944-7558-116.1.3.

Esbensen, A. J., Seltzer, M. M., & Krauss, M. W. (2008). Stability and change in health, functional abilities, and behavior problems among adults with and without Down syndrome. American Journal on Mental Retardation, 113(4), 263-277. PMID: 18564887, doi:10.1352/0895-8017(2008)113[263:SACIHF]2.0.CO;2.

Esbensen, A. J., Seltzer, M. M., & Greenberg, J. S. (2007). Factors predicting mortality in midlife adults with and without Down syndrome living with family. Journal of Intellectual Disability Research, 51(12), 1039-1050. PMID: 17991011, doi:10.1111/j.1365-2788.2007.01006.x.

Orsmond, G. I., & Seltzer, M. M. (2007). Siblings of individuals with autism or Down syndrome: Effects on adult lives. Journal of Intellectual Disability Research, 51(9), 682-696. PMID: 17845237, doi:10.1111/j.1365-2788.2007.00954.x.

Esbensen, A. J., Seltzer, M. M., & Greenberg, J. S. (2006). Depressive symptoms in adults with mild to moderate intellectual disability and their relation to maternal well‐being. Journal of Policy and Practice in Intellectual Disabilities, 3(4), 229-237. PMID: 19374469, doi:10.1352/1944-7588-114.3.147.

Esbensen, A. J., Seltzer, M. M., Greenberg, J. S., & Benson, B. A. (2005). Psychometric evaluation of a self-report measure of depression for individuals with mental retardation. American Journal on Mental Retardation, 110(6), 469-481. PMID: 16212449, doi:10.1352/0895-8017(2005)110[469:PEOASM]2.0.CO;2.

Seltzer, M. M., Wyngaarden Krauss, M., Hong, J., & Orsmond, G. I. (2001). Continuity or discontinuity of family involvement following residential transitions of adults who have mental retardation. Mental Retardation, 39(3), 181-194. PMID: 11419997, doi:10.1352/0047-6765(2001)039<0181:CODOFI>2.0.CO;2.

Seltzer, M. M., & Wyngaarden Krauss, M. (2001). Quality of life of adults with mental retardation/developmental disabilities who live with family. Mental Retardation and Developmental Disabilities Research Reviews, 7(2), 105-114. PMID: 11389565, doi:10.1002/mrdd.1015.

Orsmond, G. I., & Mailick Seltzer, M. (2000). Brothers and sisters of adults with mental retardation: Gendered nature of the sibling relationship. American Journal on Mental Retardation, 105(6), 486-507. PMID: 11958202, doi:10.1352/0895-8017(2000)105<0486:BASOAW>2.0.CO;2.

Essex E. L., Seltzer, M. M., & Krauss, M. W. (1999). Differences in coping effectiveness and well-being among aging mothers and fathers of adults with mental retardation. American Journal on Mental Retardation, 104(6), 545-563. PMID: 10587735, doi:10.1352/0895-8017(1999)104<0545:DICEAW>2.0.CO;2.

Freedman, R. I., Griffiths, D., Wyngaarden Krauss, M., & Seltzer, M. M. (1999). Patterns of respite use by aging mothers of adults with mental retardation. Mental Retardation, 37(2), 93-103. PMID: 10337126, doi:10.1352/0047-6765(1999)037<0093:PORUBA>2.0.CO;2.

Essex, E. L., Seltzer, M. M., & Krauss, M. W. (1997). Residential transitions of adults with mental retardation: Predictors of waiting list use and placement. American Journal of Mental Retardation: AJMR, 101(6), 613-629. PMID:9152476.

Seltzer, M. M., Greenberg, J. S., Krauss, M. W., Gordon, R. M., & Judge, K. (1997). Siblings of adults with mental retardation or mental illness: Effects on lifestyle and psychological well-being. Family Relations, 395-405.

Seltzer, M. M., Greenberg, J. S., Krauss, M. W., & Hong, J. (1997). Predictors and outcomes of the end of co-resident caregiving in aging families of adults with mental retardation or mental illness. Family Relations, 13-22. doi:10.2307/585602.

Seltzer, M. M., & Heller, T. (1997). Introduction: Families and caregiving across the life course: Research advances on the influence of context. Family Relations, 321-323.

Krauss, M. W., Seltzer, M. M., Gordon, R., & Friedman, D. H. (1996). Binding ties: The roles of adult siblings of persons with mental retardation. Mental Retardation, 34(2), 83. PMID: 8935888.

Seltzer, M. M., Greenberg, J. S., & Krauss, M. W. (1995). A comparison of coping strategies of aging mothers of adults with mental illness or mental retardation. Psychology and Aging, 10(1), 64. PMID:7779318, doi:10.1037/0882-7974.10.1.64.

Seltzer, M. M., Krauss, M. W., Walsh, P., Conliffe, C., Larson, B., Birkbeck, G., Hong, J., & Cchoi, S. (1995). Cross‐national comparisons of ageing mothers of adults with intellectual disabilities. Journal of Intellectual Disability Research, 39(5), 408-418. PMID:8555717, doi:10.1111/j.1365-2788.1995.tb00545.x.

Greenberg, J. S., Seltzer, M. M., & Greenley, J. R. (1993). Aging parents of adults with disabilities: The gratifications and frustrations of later life caregiving. The Gerontologist, 33(4):542-550. PMID:8375685, doi:10.1093/geront/33.4.542.

Krauss, M. W., & Seltzer, M. M. (1993). Current well-being and future plans of older caregiving mothers. Irish Journal of Psychology, 14, 47-64. doi:10.1080/03033910.1993.10557914.

Seltzer, M. M., Krauss, M. W., & Tsunematsu, N. (1993). Adults with Down syndrome and their aging mothers: Diagnostic group differences. American Journal on Mental Retardation, 97(5) 464-508. PMID: 8461121.

Krauss, M. W., Seltzer, M. M., & Goodman, S. J. (1992). Social support networks of adults with retardation who live at home. American Journal on Mental Retardation, 96(4):432-441. PMID:1739456.

Seltzer, G. B., Begun, A., Seltzer, M. M., & Krauss, M. W. (1991). Adults with mental retardation and their aging mothers: Impacts of siblings. Family Relations, 40, 310-317. doi:10.2307/585017.

Erickson, M., Krauss, M. W., & Seltzer, M. M. (1989). Perceptions of old age among a sample of aging mentally retarded persons. Journal of Applied Gerontology, 8, 251-260. doi:10.1177/073346488900800211.

Book Chapters

 

Song, J., Mailick, M. R., Greenberg, J. S., & Hong, J. (2018). The lifelong health effects of parenting a child with a developmental disability or a mental health problem. In C. D. Ryff, & R. Krueger (Eds.), Oxford Handbook of Integrative Health Science. (pp.143-154). New York, NY: Oxford University Press. doi:10.1093/oxfordhb/9780190676384.013.9.

Ha, J. & Seltzer, M. M. (2009). Caregiving across the life span. In H. T. Reis & S. Sprecher (Eds.), Encyclopedia of human relationships. Thousand Oaks, CA: Sage Publications. doi:10.4135/9781412958479.

Seltzer, M. M., Greenberg, J. S., Orsmond, G. I., Lounds, J., & Smith, M. J. (2008). Unanticipated lives: Inter- and intra-generational relationships in families with children with disabilities. In A. Booth, A. Crouter, A. C. Bianchi, & , J. A. Seltzer. (Eds.), Intergenerational caregiving (pp. 233-241). Washington, DC: Urban Institute Press.

Esbensen, A. J., Seltzer, M. M., & Abbeduto, L. (2007). Family well-being in Down syndrome and fragile X syndrome. In J. E. Roberts, R. Chapman, & S. Warren (Eds.), Speech and language development and intervention in Down syndrome and fragile X syndrome (pp. 275-295). Baltimore, MD: Brookes.

Essex, E. L., Seltzer, M. M., & Krauss, M. W. (2001). Fathers as caregivers for adult children with mental retardation. In B. J. Kramer & E. H. Thompson (Eds.), Men as caregivers: Theory, research, and service implications (pp. 250-254). New York, NY: Springer.

Robison, D., Krauss, M. W., & Seltzer, M. M. (2001). Does parenting ever end? Experiences of parents of adults with Down syndrome. In S. Pueschel (Ed.), A parent's guide to Down syndrome: Toward a brighter future (pp. 293-301). Baltimore, MD: Brookes Publishing.

Krauss, M. W., Greenberg, J. S., & Seltzer, M. M. (1999). Aging in adults with developmental disabilities and severe and persistent mental illness. In J. J. Gallo, J. Busby-Whitehead, P. V. Rabins, R. A. Silliman, & J. B. Murphy (Eds.), Reichel’s care of the elderly: Clinical aspects of aging (pp. 241-251). Baltimore, MD: Williams & Wilkins.

Krauss, M. W., & Seltzer, M. M. (1999). An unanticipated life: The impact of lifelong caregiving. In H. Bersani (Ed.), Responding to the challenge: International trends and current issues in developmental disabilities (pp. 173-188). Brookline, MA: Brookline Books.

Seltzer, M. M., & Greenberg, J. S. (1999). The caregiving context: The intersection of social and individual influences in the experience of family caregiving. In C. D. Ryff & J. Marshall (Eds.), The self and society in aging processes (pp. 362-378). New York, NY: Springer.

Seltzer, M. M. & Krauss, M. W. (1998). Families of adults with Down syndrome. In J. F. Miller, L. A. Leavitt, & M. Leddy (Eds.), Communication development in young children with Down syndrome. Baltimore, MD: Brookes Publishing.

Seltzer, M. M. (1998). Later life parenting by older mothers of adults with disabilities. In E. Bleckman & A. Brownell (Eds.), Behavioral medicine and women: A comprehensive handbook (pp. 76-80). New York, NY: Guildford Publications.

Seltzer, M. M. (1998). Service utilization patterns and organization of the service delivery system for persons with mental retardation and other developmental disabilities. In S. Allen & V. Mor (Eds.), Living in the community with disability: A cross-group perspective. New York, NY: Springer.

Gordon, R. M., Seltzer, M. M., & Krauss, M. W. (1997). The aftermath of parental death: Changes in the context and quality of life. In R. L. Schalock (Ed.), Quality of life: Its application to persons with disabilities (pp. 25-42). Washington, DC: American Association on Mental Retardation.

Krauss, M. W. & Seltzer, M. M. (1997). Life course perspectives on mental retardation research: The case of family caregiving. In J. A. Burack, R. M. Hodapp, & E. Zigler (Eds.), Handbook of mental retardation and development (pp. 504-520). New York, NY: Cambridge University Press.

Seltzer, M. M., Krauss, M. W., Choi, S. C., Hong, J. (1996). Midlife and later life parenting of adult children with mental retardation. In C. D. Ryff & M. M. Seltzer (Eds.), The parental experience in midlife. (pp. 459 - 493). Chicago, IL: University of Chicago Press.

Krauss, M. W., & Seltzer, M. M. (1995). Long-term caring: Family experience over the life course. In D. Rosenthal & L. Nadel (Eds.), Down syndrome: Living and learning in the community. (pp. 91-98). New York, NY: Wiley.

Krauss, M. W., & Seltzer, M. M. (1994). Taking stock: Expected gains from a lifespan perspective on mental retardation. In M. M. Seltzer, M. W. Krauss, & M. P. Janicki (Eds.), Life course perspectives on adulthood and old age (pp. 213-220). Washington, DC: American Association on Mental Retardation.

Seltzer, M. M., & Krauss, M. W. (1994). Aging parents with co-resident adult children: The impact of lifelong caregiving. In M. M. Seltzer, M. W. Krauss, & M. P. Janicki (Eds.), Life course perspectives on adulthood and old age (pp. 3-18). Washington, DC: American Association on Mental Retardation.

Seltzer, M. M., & Ryff, C. D. (1994). Parenting across the lifespan: The normative and nonnormative cases. In D. L. Featherman, R. Lerner, & M. Perlmutter (Eds.), Life-span development and behavior (pp. 1-40). Hillsdale, NJ: Lawrence Erlbaum.

Krauss, M. W., & Seltzer, M. M. (1993). Coping strategies among older mothers of adults with retardation: A life span developmental perspective. In A. P. Turnbull, J. M. Patterson, S. K. Behr, D. L. Murphy, J. G. Marquis, & M. J. Blue-Banning (Eds.), Cognitive coping, families, and disability. Baltimore, MD: Paul H. Brookes.

Seltzer, M. M., & Krauss, M. W. (1993). Adult sibling relationships of persons with mental retardation. In Z. Stoneman & P. Berman (Eds.), The effects of mental retardation, disability and illness on sibling relationships: Research issues and challenges. Baltimore, MD: Paul H. Brookes.

Seltzer, M. M., and Seltzer, G. B. (1992). Aging in persons with developmental disabilities. In F. J. Turner (Ed.), Mental Health and the elderly: A social work perspective. (pp. 136-162). New York, NY: The Free Press.

Seltzer, M. M. (1992). Family caregiving across the full life span. In L. Rowitz (Ed.), Mental retardation in the year 2000. (pp. 85-100). New York, NY: Springer-Verlag.

Seltzer, M. M. (1992). Aging in persons with developmental disabilities. In J. E. Birren, R. B. Sloane, & G. D. Cohen (Eds.), Handbook of mental health and aging. (pp. 583-596). New York, NY: Academic Press.

Seltzer, M. M., Krauss, M. W., & Heller, T. (1991). Family caregiving over the life course. In M. P. Janicki & M. M. Seltzer (Eds.), Aging and developmental disabilities: Challenges for the 1990s. Washington, DC: Special Interest Group on Aging, AAMR.

Janicki, M. P., Krauss, M. W. & Seltzer, M. M. (1988). Agenda for service policy, and research. In M. P. Janicki, M. W. Krauss, & M. M. Seltzer (Eds.), Community residences for persons with developmental disabilities: Here to stay. Baltimore: Paul H. Brookes.

Janicki, M. P., Krauss, M. W. & Seltzer, M. M. (1988). Context, models, and issues for community residences. In M. P. Janicki, M. W. Krauss, & M. M. Seltzer (Eds.), Community residences for persons with developmental disabilities: Here to stay. Baltimore, MD: Paul H. Brookes.

 

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