Last updated September 19, 2017  

Current Studies

We currently are working on three research projects focused on families who have an adolescent or adult child with a disability. Families who have a member with a disability often face unique challenges as they navigate their daily lives. We are studying the daily life of these families, their profiles of resilience and vulnerability, community resources, supports, and services they receive that sustain their ability to provide lifelong care to their family member with the disability.


Adolescents and Adults with Autism: A Study of Family Caregiving
This study began in 1998 and follows 461 families living in Wisconsin and Massachusetts who have a son or daughter with an autism spectrum disorders ages 10 or older.
Family Adaptation to Fragile X Syndrome
This study began in the fall of 2008 and will include 115 mothers living across the United States who have a son or daughter with fragile X syndrome who is 12 years of age or older. This study is currently recruiting participants. Please see our study information at the left of the page for further details.
Population Studies
This study uses data from two existing landmark research studies; Midlife in the United States (MIDUS) and the Wisconsin Longitudinal Study (WLS). We are examining at the long-range effects of parenting a child with a developmental disability (DD) or mental health problem (MI), and also parents who have experienced the death of a child.



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