Last Updated July 13, 2010

Resources & Links


SB-List - A discussion list for parents of children with spina bifida. The list focuses on information sharing and support. Our children range in age from infants not yet born to 30 and 40 year olds.

SB-List has been hosted by the Waisman Center since 1996. It was the first Internet discussion list specifically for parents of children with spina bifida.

To join, send your request to Linda Rowley at
Include your full name and indicate that you are the parent of a child with myelomeningocele spina bifida.

The list is administered through Listserv software. Once you are added to the list, you can use listserv commands to change your subscription options. These options include:

List Archives

The SB-List has a list archive which goes back to 1996 when the list was called "SB-Parents". The archive is private and can only be searched by list members. The archive has a powerful search engine with many search options. You will need to be a member of SB-List and sign up for a password to access the archives. See the link below for details.

SB-List Archive
SB-List Photo Gallery

The photo gallery contains photos SB-List member's children and families. You can visit the photo gallery at the link below: