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Personal Health Records / Care Notebooks



One this site you will a number of resources to help you create a Personal Health Record / Care Notebook for your child who has disabilities, special health care needs or both.

This website includes:

Look for getting started, articles about Care Plans, downloadable templates and forms, web-based care notebooks, software-based personal health records, reference information, and some extras. You can always find this menu just below the banner at the top of each page.


About Personal Health Records / Care Notebooks

A Care Notebook is an organizing tool for families who have children with special health care needs. Use a Care Notebook to keep track of important information about your child’s health and care. Keeping your own personal health record (PHR) allows you to provide doctors with valuable information that can help improve the quality of care you receive. A PHR can help reduce or eliminate duplicate tests and allow you to receive faster, safer treatment and care in an emergency. In short, a PHR helps you play a more active role in yours and your loved ones’ healthcare.

Types of Personal Health Records / Care Notebooks